Thursday, November 13, 2008

Nov. 13 10:30 p.m.

Good question Laura. The man that made the brace spoke on the phone to the PT and told him how to measure (more or less) and mark the brace. So he did it and I took it down to Provo where it was made. Russ (the man who made the brace) trimmed it up and back to the hospital I went. If you want something done.....

He seems much more comfortable. He was even agreeable in PT and ate a little better. This was sooo not the case yesterday! There was no way anyone was going to get him to do anything yesterday. I saw a whole new level of defiance. I had a flashback to the terrible twos.
We thought he had entered stage 4 but it might have been the withdrawal from Ritalin since he was so much better today. Stage 4 would last longer than two days and that is how long he has been off the Ritalin. They are going to restart it tomorrow as his cognition took a big drop.

The scary thing about those two days is that they are what it really will be like when he does enter stage 4 and that could likely be after he comes home! (Oh help) Either the stage has to come and go or the feeding tube has got to go before he comes home. Can you imagine him yelling and swearing at me all day and then I have to place my fingers on his throat to check his swallowing? The temptation might be too much! (jk of course)

Thank you "Marks" from Cookietree for your visit today. That was amazing! He had been pretty groggy all morning. He was very cognitive during the visit (comparatively), he did tell them to tell Harold that he should be back at work in a week. :) After the visit he met with speech and ate a little lunch then slept until 3:00 when PT came to get him again. That was when David and I had to leave.

I'll be going in later tomorrow and hopefully get a better report.

We have cleared up the "Blaine" fixation. He is calling David. He called out Blaine's name and again I told him that Blaine is in Green River. He got a little annoyed and said then who is that sitting over there? I told him that it was David and he said "yes, yes him!" Then he asked David to close the door.

Oh, one more note. Watch out, my girls are actually out there driving, getting in their practice hours!

So, areas of focus: cognition, eating, sore throat, and balance.

Thanks Cookietree for the goodies and thanks everyone for your prayers.

1 comment:

Lynn said...

WOW that is great that he had a good day. So, Stage four, what does that consist of? how many stages are there? We have a friend that had a head injury and he has short term memory loss. He could only remember a few people and he remembered Bob. His mom was not to happy that he remember Bob but not her. He did get better and remembers everyone now. do they say anything about levi's short term memory?
How are all the kids doing? I hope you can rest kelly. Take care of yourself so that you don't get sick ok.
lynn