Oct.11 2:21

I just realized I could change the font. Fun stuff. So not much change today. They took the breathing mask off and did a deep suction. I'm sorry if I'm repeating some things. He is coughing a little better today. Still very little response to commands although he did wiggle his toes on command for the Dr. this a.m. Maybe I need to clarify something. We talk about how much he moves and the things he does and doesn't do and it can get confusing. He does move his arms and legs and head. He will squeeze your hand when you hold his. He coughs and grunts and can become agitated (as with the Dr. this a.m.). These are mainly considered reflex motions. And while these are good and we feel also an indication of good spinal cord health, we get more excited when he responds to commands. We are not having any visitors right now, except family, as he needs to keep his pressure down (in the brain). It goes up when they have to move or bathe him or perform a procedure. Also visitors can cause the same effect. It has been a full week now so we are looking for the swelling to begin receding, also for him to begin absorbing the fluid that is now being drained from his brain. They are also being very cautious re: pneumonia. another reason for the decision re: visitors. I hope everyone can understand that we don't intend to hurt feelings or be rude. Simply, Levi has to come first. We are so grateful for all the help and thoughtful gestures from so many wonderful people. Most of all we thank you for your prayers. Therein lies the greatest power and service.